Showing posts with label brain tumour foundation of canada. Show all posts
Showing posts with label brain tumour foundation of canada. Show all posts

Wednesday, February 8, 2012

See these kids? I know them all as well as their incredible parents.



They are all some of the bravest and coolest (and most fun) people I know! They are local brain tumour fighter/survivors and their parents and I am really fond of each and every one of them (and they are all doing well right now too I am happy to add).
The are part of an program I love called BrainWAVE. BrainWAVE is a support program for families with a child (19 years old or younger) with a brain tumour and it is comprised of four separate but related components: events, parent support, information sharing and education. If you are looking for a way to provide fun and support for your child and family as you face the journey with a pediatric brain tumour, consider joining BrainWAVE.

Several times a year, BrainWAVE families have the opportunity to meet and relax through fun activities such as trips to sports events, historical sites and other family attractions. These FREE events give all members of the immediate family a welcome break from treatments and doctors' visits. Our next event is March 4 and I can't wait!

For more information on BrainWAVE and Brain Tumour Foundation click the links. If you have been affected by a brain tumour you are NEVER alone and there is ALWAYS hope and Brain Tumour Foundation is a wonderful resource with Education days, Support and Loads of information whether you are a child or an adult, have a brain tumour, or love somebody with one.

The 2012 Spring Sprint is coming up as well on May 27 click here for more info on that. Its a wonderful time for everybody. Namaste.

Monday, May 30, 2011

Hope you got to get outside and enjoy some nature! Lucky for us it's everywhere...












This weekend was the annual Brain Tumour Foundations Spring Sprint and it was a HUGE success! Thankfully the weather cooperated s well (For more info on this marvelous organization click here). The event was held once again at such a lovely spot. Burnaby Lake Park (Click here for a map). Each time I go there I vow to return more than once a year. If you love nature, photography, the outdoors, bird watching (it's a wildlife reserve), or going for a nice stroll or a run, you really must go. I know we are blessed beyond belief with the ocean, seawall and stanley park on our doorsteps right downtown but Burnaby Lake Park is sooo worth a visit. And its a 15 minute drive. I took countless pics. Here are some. You can click on any to enlarge. Namaste.

Sunday, March 6, 2011

Can't wait for the 2011 Spring Sprint! Yayy!!



Do you know someone who has been affected by a brain tumour? If you know me you do..
I hope you don't, but the truth is.. you probably do, or will at some point. I probably know a dozen people who are brain tumour fighter/survivors.

Did you know that at least 55,000 Canadians are living with a brain tumour right now? Including babies and children? Sometimes babies are born with brain tumours!

But there's hope! There's ALWAYS hope and each year there's the Spring Sprint and it's LOADS of fun!!

Participants of all ages can walk, run or sprint to pay tribute to the courage of survivors and honour loved ones they have lost.
Everyone is walking with the same goal in mind: Imagine a Cure!

*Click HERE for more information! Registration is on! (there are spring sprints in many different cities across Canada and there's even a virtual Spring Sprint this year!)

By participating in the Spring Sprint you can help to imagine a cure!

Our Spring Spring (here in Vancouver) is Sunday May 29 at Burnaby Lake East Rowing Pavilion.

Registration is at 10am and the Sprint starts at 11am! To register click HERE
It's a 5k walk/run. (I prefer to prance! hahaha..)

This event is super fun! Hope to see you there!

The Brain Tumour Foundation of Canada's mission is to reach every person in Canada affected by a brain tumour through support, education , information and research Click HERE to learn more.

Thursday, October 14, 2010

Join me at the BC Cancer Agency Saturday October 23!


I'm proud beyond words to be representing The Brain Tumour Foundation of Canada at the BC Cancer Agency on Saturday October 23! There will be presentations by Oncologists and other Healthcare Specialists. Networking, Support groups and more! Lunch is provided and it's FREE to patients, their caregivers and healthcare professionals. ♥.♥.♥.

Registration required- 1-800-265-5106 ext 231 or register online at www.infodays.ca


Friday, October 8, 2010

October is Brain Tumour awareness month♥


Brain Cancer is an orphan cancer that needs loads of more press than it gets! Did you know that 55,000 Canadians are living with a brain tumour right now? Including babies and children :(

Approximately 10,000 more folks are diagnosed with a brain tumour every single year here in Canada. Brain tumours are the leading cause of solid cancer death in children under the age of 20 and are the third leading cause of solid cancer death in young adults as well between the ages of 20-39. Fact.

We don't like to think about this stuff but it's all true and real life for too many people. Lets bring brain cancer to the forefront!! We need funding.

Here are some more Canadian facts about Brain Tumours:

-Because brain tumours are located in the control centre for thought, emotion, and movement, they can dramatically affect an individual's physical and cognitive abilities and quality of life.

-There are over 120 different types of brain tumours, making effective treatment very complicated.

-Brain tumours in children are different from those in adults and are often treated differently. Although as many as 60% of children with brain tumours will survive, they are often left with long-term side effects.

-Metastatic brain tumours are the leading cause of solid cancer death in children under the age of 20, now surpassing acute lymphoblastic leukemia. They are the third leading cause of solid cancer death in young adults ages 20-39.

-The most common type of primary brain tumour, glioblastoma multiforme, is also the most malignant. Average survival, even with aggressive treatment, is less than one year.

-Primary brain tumours (originating in the brain) occur in 8 out of 100,000 people.This number rises to approximately 32 per 100,000 when metastatic tumours (cancer originating in other areas of the body that has spread to the brain) are included.

-Metastatic brain tumours occur at some point in 20-40% of people with cancer

-Enhancing the quality of life for people with brain tumours requires access to quality special care, clinical trials, follow-up care and rehabilitative services.

-Currently, the Canadian medical system does not track statistics on primary brain tumours. Complete and accurate data is needed to facilitate the research that will lead to a better understanding of this disease and improved diagnosis and treatment.

For more information, resources, programs, and support and ideas on ways to help contact The Brain Tumour Foundation of Canada. You can click here for more info :)



Tuesday, October 5, 2010

"Be kinder than necessary, for everyone you meet is fighting some kind of battle."



Yesterday a friend told me that the bank of Montreal stopped recognizing holidays.
Many other organizations and businesses have done the same as we know, and some I even might agree with. Some things just aren't "in" or politically correct in the eyes of some these days.

I was told specifically that "allegedly" they stopped recognizing Remembrance day and I certainly hope that is not true. If it is true it deeply saddens me. I really hope my friend is wrong .

Without getting too deeply into things here I would like to share an article I saw this morning in the Washington Post on brain injuries, war and Afghanastan. It is an American article but it really illustrates how difficult living with a brain injury can be and just how truly awful and absolutely devastating some can be.

The article is here

My friends and loved ones who know me well know that I have a few causes that I have a real soft spot for and one of them is Veterans, and more specifically PTSD.
This article doesn't speak of PTSD, but Post Traumatic Stress Disorder is a brain injury as well, and you don't have to be serving overseas to have it. The walking wounded are all around us. Some diagnosed and many not, and we are in this world together.

Brain injuries aren't always obvious but can be a real challenge for the person (s) having them and their loved ones on a daily basis (and thats an understatement). It is important to remember that trauma changes the brain as well. There are the obvious brain injuries from shrapnel and explosions(as in the article), car accidents, falls, and brain tumours and surgeries, but trauma changes the brain as well. I just wanted to share this article in light of Remembrance Day coming up next month. I know it's difficult to read (I have a box of kleenex in front of me as I type), but it's real life.

Lets all be very kind to each other whenever possible. And I really hope to see you at the Cenotaph next month on Remembrance Day. I know I'll be there again.

Wednesday, August 25, 2010

The Brain Tumour Foundation is hosting an Education Day here in Vancouver on September 18!

Have you been affected by a brain tumour or know someone who has?
Brain cancer is something that most people don't like to think about but its very real.

Did you know that In Canada, there are an estimated 55,000 people living with a brain tumour, and each year an additional 10,000 are diagnosed? It is really frightening but there IS help out there and support.

Brain cancer is one of those orphan cancers that doesn't receive very much attention/funding etc. but I can tell you... it is a devastating diagnosis.
But there is hope! There's always hope and lot's of it!

Thousands of people find emotional support and comfort and resources through The Brain Tumour Foundation of Canada's programs and services, all the while gaining a better understanding and knowledge of their disease.

Next month The Brain Tumour Foundation is hosting an "Education Day" and you are invited! It's a morning of hope and support and information for all!

It is a Pediatric Brain Tumour Seminar Saturday September 18th from 9:00am-12:00pm and is at BC Children's Hospital, Main Auditorium. 4480 Oak St, Vancouver.

I'll certainly be there!

The topics are:

-Late Effects of Brain Tumor treatment
-Transitioning panel discussion

For more information or to register click this link www.educationdays.ca
A link to the Brain Tumour Foundation of Canada is www.braintumour.ca

Saturday, May 15, 2010

Brain Tumours are more common than you think










Did you know that there are currently 55,000 Canadians living with a brain tumour right now in Canada? And another 10,000 will be diagnosed this year?

Thats a lot of people.

I know it sounds shocking (and believe me when someone you love is out of the blue diagnosed with a brain tumour?) it can send you reeling...

Take it from me. Someone I love very much is a brain tumour fighter/survivor.
My niece. She is the strongest, coolest, wisest, most intelligent and bravest human I have ever known.

Some things we just can't explain in this life. There are simply no answers for certain events, but thankfully there IS HOPE.

There is always hope.

And thanks to the Brain Tumour Foundation of Canada there is more than hope.
There is support, research, education and information available to everyone affected by a brain tumour. But they need our help. www.braintumour.ca

Sadly there are certain types of cancers that people don't like to speak about and this is one of them. I suppose the mere thought is so frightening to many of us we choose to not even go there in our minds, but the truth is...we can not ignore it.

We need to at least raise awareness and support those affected by a brain tumour. There are many different types of brain tumours but they are all very dangerous. Sometimes babies are born with brain tumours. :(
No one knows why.

We need more research and more treatment options. Sadly brain cancer is considered one of those 'orphan cancers' (meaning that it doesn't get a lot of press or funding compared to some other cancers). But thats not to say that it is any less. A brain tumour diagnosis is absolutely devastating.

We want to eradicate every cancer out there one day thats for sure.

Wouldn't you love to say to your children one day that "There used to be this thing called cancer"?

I know I sure would.

Anyways, the Spring Sprint is coming up and it is SUPER fun!!!

You can walk, run or sprint in support of those affected by a brain tumour and it really is...amazingly fun! You can raise money or awareness or both.

Or just come out and enjoy the festivities and show your support!

It takes place Saturday May 29 at Burnaby Lake East at the Rowing Pavillion and check in is 10:00am. Its a 5 km walk/run, and the scenery is spectacular. It is a guaranteed amazing experience.

Come on down and join us!

Here is a link for the Spring Sprint to find out all about it www.springsprint.ca
Hope to see you there!